I would like to share a resource that I believe is extremely important and beneficial to families who would like to learn more about their child's diagnosis, condition, injury, and treatment. This resource is The Emily Center, and it is a public resource library located inside of Phoenix Children's Hospital. The website is
http://www.phoenixchildrens.com/emily-center/
The Emily Center is named after a little girl named Emily Anderson, whose parents founded The Emily Center to provide others with the information necessary to understand their child's diagnosis or injury. "The Emily Center is the most comprehensive pediatric health library in the Southwest, providing hundreds of patients and families materials about child health, injury and illness." (phoenixchildrens.com).
Here is a quote from the Emily Center Website, "Founded in 1990, the Emily Center is named after Emily Anderson. Emily fought a rare form of leukemia for four years, before losing her battle a few days before her seventh birthday. Frustrated by the lack of easy to understand information about Emily's illness, her parents founded The Emily Center so that families of sick children would always have access to pediatric health information that is accurate, easy to understand, and free of charge."
The Emily Center is staffed with highly skilled nurses to answer questions and help with research.
I believe this is such an important resource for those with disabilities, or those who know someone with a disability. It provides information and education relating to the specific diagnosis, injury, and treatment, and I believe education is the most important step we can take to helping those with disabilities, as well as understanding them.
Friday, September 11, 2009
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Great insight into the Emily Center. It is great to see a resource like that available to parents and families. Especially new parents who may have a child get seriously injured or diagnosed with a disease and they don't know where to turn for their answers. Every parent should know about that resource if something heartbreaking was ever to happen to their child.
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